So I had clinic on the 30th, and after not going in a year I expected to get flak from my doctor. Which I did. My PFT's were 74%, I got blood work and a sputum culture. All in all other than some shortness of breath and wheezing problems recently, I think CF wise I'm doing OK. *Knock on wood* I do have a DEXA scan and an EMG/NCV test coming up, but I expect them to go well. My primary doctor's office called in reference to labs I get for them (when I get IV's) and I some of my results are still low, despite increasing my dose. So I have some more supplements to take... YAY. More pills.
In other new, my husbands tee shirt designs are getting out there and doing well!
On Facebook - https://www.facebook.com/CfDunbarDesigns
On Twitter - https://twitter.com/CFDunbarDesigns
His designs are on:
Tee Public - https://teepublic.com/user/cfdunbar
Red Bubble - http://www.redbubble.com/people/cfdunbar/portfolio
He is actually working on two designs for me. One for cystic fibrosis and one for mitochondrial disease. I'll post the links for each on here when he gets them done. They aren't really awareness shirts, I mean you may get some questions but the idea was definitely not to fundraise. Although we will be donating a portion of his profits to each respective foundation. I don't define myself by my illnesses but I certainly feel as though they have helped to shape who I am.
Follow my blog with Bloglovin
About Me
- Chrissy
- I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.
Showing posts with label Lung Function. Show all posts
Showing posts with label Lung Function. Show all posts
Wednesday, November 6, 2013
Wednesday, November 30, 2011
Small update...
About 3 weeks ago I started feeling awful. It came in quickly and I'm pretty sure it is the flu. I'm dismayed that I can't kick this thing. I'm extremely bothered by the fact that everyone around me seems to be paniced over this...I mean most people get a cold or a virus and it is really not a huge deal. Me? I get it and it stays around for a while. I suppose what adds to the worry is that I haven't been this sick since before I was actually diagnosed with CF at 21. So everyone is looking at this as a huge back slide for me.
I've lost my voice, still have a cough, am wheezing like a 40 year smoker and still have a fever! I have no health insurance, but I think I'm going to see my primary on Friday, although I am honestly not sure what will happen after that. I can't be admitted at our local hospital, I don't have health insurance. Then next week I have my CF clinic; where I hope they admit me. But that rarely ever turns out the way I want, so who knows what will happen. My husband is positive my PFT's have gone down, and I have a feeling he's right. My muscles are just so sore from coughing, moving even hurts. But I've been trying to maintain a level of activity and doing some breathing exercises to try to help my lung function. I'm hoping that my PFT's won't have taken a serious hit because of this, a small one I can handle (I think).
I've lost my voice, still have a cough, am wheezing like a 40 year smoker and still have a fever! I have no health insurance, but I think I'm going to see my primary on Friday, although I am honestly not sure what will happen after that. I can't be admitted at our local hospital, I don't have health insurance. Then next week I have my CF clinic; where I hope they admit me. But that rarely ever turns out the way I want, so who knows what will happen. My husband is positive my PFT's have gone down, and I have a feeling he's right. My muscles are just so sore from coughing, moving even hurts. But I've been trying to maintain a level of activity and doing some breathing exercises to try to help my lung function. I'm hoping that my PFT's won't have taken a serious hit because of this, a small one I can handle (I think).
Subscribe to:
Posts (Atom)