My last entry was back in February; so I'm going to try to catch you up. I wasn't feeling well for a while. As I started to feel better my friend Chris offered Frank and I her condo in Ocean City for a week. So we decided; since we haven't been on a vacation in a while, that we were going to go! I really love the beach, a lot more than I did when I was younger. It is just a relaxing and peaceful, and our trip was wonderful. My little brother Pete went with us (as well as Kate of course) and everyone really had a great time! We came home to new living room furniture (sofa and love seat) which was nice, and then we all got sick the following week.
That brings us to today, where everyone is definitely feeling better! I'm excited about my birthday coming up (Thursday); I'll be 34. It seems like just yesterday that Kate was born and I got married! So this week I have been on a big gratitude trip. I am so thankful for my life, and I have been so blessed with my family and friends. Frank and Kate are taking me out for my birthday on Saturday, but I have no idea where we are going! I think they are going to blind fold me in the car! I don't get a hint either, when they asked what I wanted I said to spend time with them. So I'm guessing that's what we are doing, going to spend the day together. Other than that I have no idea! It will definitely be a surprise!
I also have to post about my daughter. Kate and I both lead teams at our local Great Strides CF walk, but last year I just couldn't participate. (I wasn't feeling well and my grandmother had just passed away) This year we were talking about it and Kate said she'd like to take over my team this year and lead it for me. So she did. She and I worked on a montage for the walk this year and so far it seems to have gotten a really good response!
About Me
- Chrissy
- I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.
Showing posts with label Pete. Show all posts
Showing posts with label Pete. Show all posts
Tuesday, April 12, 2011
Wednesday, November 3, 2010
Of Hope and Wars
Yesterday was a beautiful fall day, and I went to Gettysburg with my mom and my brother Pete. I took a lyrica before we left and it seemed to help- although I am really sore today! It was just a great day; I got out of the house and took some good pictures. I enjoy taking them because when I look at them I can't tell that I'm sick. I know it probably sounds crazy but it's true.
Walking around the battle fields I was thinking of all of the younger people who lost their lives. This also made me think about my own mortality, and made me thankful for all of the blessings I have in life. I loose site of how lucky I am sometimes.
Then last night I got online to work on some things, and as facebook came up I saw a post about another death. This one was CF related. I haven't been to the forums a whole lot lately, and I missed how sick he had gotten. He passed last night; I did not know him--but I feel like we were kindred spirits. (I feel like that about every one with CF) Fighting the same fight, just in different ways. I had never really spoken to him; but his wife Lisa is on the CF forums I use for support. I always feel horrible when I see the impact CF has on parents, couples, friends and siblings. It breaks my heart to know that one day my loved ones may feel that same loss. And there is nothing I can do about it. Sure I can take care of myself so that it doesn't happen anytime soon--but really does it matter when you loose a loved one? I don't think so really...
I just feel horrible for the loss that Lisa has experienced and I'm sending her my love and prayers. I'm also hugging my CF family, the ones who had met him and his wife, and the ones who hadn't...and I have a message:
CF may be a tie that binds us...but everyone I have met online and off have been truly wonderful and inspiring. I'm thinking of you all today, and if I'm being honest I think of you all everyday and I'm always wishing you the best. Even if I do not say it often.
Walking around the battle fields I was thinking of all of the younger people who lost their lives. This also made me think about my own mortality, and made me thankful for all of the blessings I have in life. I loose site of how lucky I am sometimes.
Then last night I got online to work on some things, and as facebook came up I saw a post about another death. This one was CF related. I haven't been to the forums a whole lot lately, and I missed how sick he had gotten. He passed last night; I did not know him--but I feel like we were kindred spirits. (I feel like that about every one with CF) Fighting the same fight, just in different ways. I had never really spoken to him; but his wife Lisa is on the CF forums I use for support. I always feel horrible when I see the impact CF has on parents, couples, friends and siblings. It breaks my heart to know that one day my loved ones may feel that same loss. And there is nothing I can do about it. Sure I can take care of myself so that it doesn't happen anytime soon--but really does it matter when you loose a loved one? I don't think so really...
I just feel horrible for the loss that Lisa has experienced and I'm sending her my love and prayers. I'm also hugging my CF family, the ones who had met him and his wife, and the ones who hadn't...and I have a message:
CF may be a tie that binds us...but everyone I have met online and off have been truly wonderful and inspiring. I'm thinking of you all today, and if I'm being honest I think of you all everyday and I'm always wishing you the best. Even if I do not say it often.
Wednesday, August 26, 2009
life...
So since it has been a while since my last blog I'll give you the dirt on what has happened since then!
~ The adoption day came, and despite being emotional it was my husband who told a story that made everyone cry. For once...it wasn't me!!! ;o)
~ My husband and I celebrated our 11th aniversary on the 22nd of August. We went on a weekend trip to Washington DC. Kate came with us, we always celebrate our anniversary with her.
~ My brother Pete turned 28 on the 23rd! He is doing well, I think. I always worry that he isn't. I guess that's the big sister in me. We are having Pete over this coming Friday for a birthday dinner! No matter how old he gets he'll still be my little brother, even if he is taller than me!
~ Kate is getting ready to start school next week and she is really excited about it! She went school shopping with her Nana and she had to get clothing from the juniors section...my little girl isn't so little anymore!
All in all this past week has been good, I had a NIH visit last Wednesday and my PFT's went up to 82% (FEV1) They were very concerned they would continue to trend down because of my inability to exercise lately. YAY!
~ The adoption day came, and despite being emotional it was my husband who told a story that made everyone cry. For once...it wasn't me!!! ;o)
~ My husband and I celebrated our 11th aniversary on the 22nd of August. We went on a weekend trip to Washington DC. Kate came with us, we always celebrate our anniversary with her.
~ My brother Pete turned 28 on the 23rd! He is doing well, I think. I always worry that he isn't. I guess that's the big sister in me. We are having Pete over this coming Friday for a birthday dinner! No matter how old he gets he'll still be my little brother, even if he is taller than me!
~ Kate is getting ready to start school next week and she is really excited about it! She went school shopping with her Nana and she had to get clothing from the juniors section...my little girl isn't so little anymore!
All in all this past week has been good, I had a NIH visit last Wednesday and my PFT's went up to 82% (FEV1) They were very concerned they would continue to trend down because of my inability to exercise lately. YAY!
Saturday, July 25, 2009
My Brother...
His name is Peter James, and he is four years younger than me. He does not have CF, he is just a carrier of the D F 508 gene. He has a few health issues of his own, but all in all he is healthy.
He is sweet and kind, he has a good heart and sense of humor. Pete is a caring guy. He works hard, and when he isn't working he is doing things for our mom and dad.
Pete worries about me a lot; although he won't tell me he does. I know it, I can see it when he looks at me and I can hear it when he talks to me. I can usually tell with most people; a talent I picked up a few years after my diagnosis. He lies about things to protect me, nothing big...all small little white lies or not telling me everything...but I can tell when he does it. Again it's a talent after years of dealing with doctors concerning my unknown mitochondrial mutation an CF. However with him I think I know because, we are connected.
I don't know if he read's my blog...but that's ok. I'm not really writing this for him, or for me. I'm writing this to tell those who read how lucky I am to have him for a brother. Sure he electrocuted me...twice; and yes he flushed my My Little Ponies hair brushes and ribbons down the toilet; no doubt he hit me over the head with a Tonka truck; and he totally hit me in the head with a wrench and a mop too. I can imagine the list of things I did in retaliation or to start the fights were just as rough! HAHA!
He is a great brother, and I could not ask for a better one. No matter what mistakes he has made or will make he will always be my little brother.
I figured that I'd blog about him today because I'm sick of blogging about me! I don't have any news anyway!!
He is sweet and kind, he has a good heart and sense of humor. Pete is a caring guy. He works hard, and when he isn't working he is doing things for our mom and dad.
Pete worries about me a lot; although he won't tell me he does. I know it, I can see it when he looks at me and I can hear it when he talks to me. I can usually tell with most people; a talent I picked up a few years after my diagnosis. He lies about things to protect me, nothing big...all small little white lies or not telling me everything...but I can tell when he does it. Again it's a talent after years of dealing with doctors concerning my unknown mitochondrial mutation an CF. However with him I think I know because, we are connected.
I don't know if he read's my blog...but that's ok. I'm not really writing this for him, or for me. I'm writing this to tell those who read how lucky I am to have him for a brother. Sure he electrocuted me...twice; and yes he flushed my My Little Ponies hair brushes and ribbons down the toilet; no doubt he hit me over the head with a Tonka truck; and he totally hit me in the head with a wrench and a mop too. I can imagine the list of things I did in retaliation or to start the fights were just as rough! HAHA!
He is a great brother, and I could not ask for a better one. No matter what mistakes he has made or will make he will always be my little brother.
I figured that I'd blog about him today because I'm sick of blogging about me! I don't have any news anyway!!
Subscribe to:
Posts (Atom)