More mito awareness

It's mito awareness week as most of my friends and family know, but a few still seem wrapped up in their own lives. I'm not really surprised, it happens during CF awareness too. I do not for one second think I am the center of the universe, but it would be nice if some of my loved ones at least acted like they were interested in a cure. For either illness. It isn't as if we only get to pick one charity/disease to champion so I am not sure why it is like pulling teeth to get them to come out to an event or to share a post to raise awareness.

Back to raising awareness...

Mitochondria are in almost every cell in the body, and produce 90% of energy needed by the body to function. When there is a dysfunction in the mitochondria the body is not able to convert food and oxygen to energy. The heart, brain, muscles and lungs, are the most affected by mitochondrial disease because the require the most energy. Someone affected may have strokes, seizures, gastro-intestinal problems, (reflux, severe vomiting, constipation, diarrhea), swallowing difficulties, failure to thrive, blindness, deafness, heart and kidney problems, muscle failure, heat/cold intolerance, diabetes, lactic acidosis, immune system problems and liver disease.


Some of my symptoms overlap with my cystic fibrosis, so I guess in a sense I got a double whammy. Please go to UMDF.org for more information on mitochondrial disease and how you can help. Another good site to check out is mitoaction.org

Well...

So today I went in for my IV therapy. My doctor told me yesterday I would be fine to go in, although in truth I was not sure. So I did as my doctor advised and went in. They couldn't treat me. They sent me away. Apparently the Frederick Memorial Hospital infectious disease control says I need to be in isolation!

"Before the blisters are crusted over, the virus can be spread to anyone who does not have immunity to chickenpox through vaccination or previous infection. " (http://www.medicinenet.com/shingles-rash/article.htm)

All of my blisters are dried up and scabbed over. They are not oozing, it is covered up on my back and under my arm...out of sight... But the nurses have to do what the FMH infectious disease people say. No matter how dumb. Oh and no one even looked at the rash. Not a soul, so I'm not sure why the conclusion could be made that I would need to be in isolation. But whatever...

They did not give me the name of who it was that said I need isolation. So they sent me to my Dr's office. I go in and my dr is not even there! So I sat and waited...and waited...and then my dr came in and said she would see me. HUH? Just admit me so I can get the IV's!

I'm totally freaked out about what she said yesterday about my immune system. About being at a higher risk for certain things...so why would they make me wait? I'm so upset right now and my pain meds just don't seem to be helping much.

So she says she'll see me. FINE. So I wait and wait....and wait and wait....finally I wrote her a note apologizing for being a problem. I just asked her to call me today and tell me what to do. I would like to be admited so that I can get my IV's as they are uber important right now.
But right now I get the feeling they'll just tell me to rest at home for 2 weeks!!

My doctor always uses the analogy of a car and gas. She says I am the car and right now I'm on E, just barely hanging in. If your car runs on E constantly eventually it starts to cause damage.
The vitamins, minerals and lipids are the gas and it just goes out just as quickly as they put it in.

So what happens when I run out of gas completely?