About Me

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I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.

Wednesday, October 6, 2010

Long time no update!

So it's been a while since my last post, and honestly I think it was a good idea to take a break. I was getting sick of complaining and I'm sure those who read this were sick of reading!
So I do have some good news and some bad. The good news is that my PFTs have gone up! That was a nice surprize being that I'm not able to exercise much due to my muscles. Now the bad news. I have no health insurence. While on the CF front it makes no difference, it does for everything else. I just broke down and had my lyrica prescription called in. My cost is somewhere around $195, which is better than the $300 I was quoted earlier. But it is still not something I can afford. So I'm stuck here trying to figure out what I can do. I'll figure it out though and it will be fine. I'm going to start being optimistic again.

So my daughter started the ninth grade this year, and we got progress reports last week. She has A's in all of her classes! I am so proud of her. Also she has been cooking dinner a lot, to get expirience with different techniques and such. I'm hoping that next summer we will be able to put her in culinary camp again, I know she really likes it there!

Things are going pretty well here, and the things that aren't going well I'm working on solutions for! Life is too short for me to complain and sit around hoping things get better. It's time to get up and start doing more about it.