About Me

My photo
I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.

Monday, July 30, 2012


For the past week I’ve been feeling pretty tired and yesterday I started experiencing bone pain. (I call it that b/c it feels like the pain when I broke my ankle/wrist/knee. Not the break part but the pain you feel after the bone sets and it starts to heal.) My left arm and my right leg, not to mention my hips feel out of socket. I couldn’t even put my own pants on. I’m not feeling sorry for myself but frustrated with my body. I’m going to try some Bayer Back and Body, but I’m not sure if it will help.

Last post I was excited to go on vacation. We went to Duck, NC with friends. We had a pretty good time although I felt like I missed a lot. My biggest missed moment was watching the sunrise from the beach. I just couldn’t wake up to do it. But I did spend some time on the deck, granted it was in the afternoons and evenings but it was nice. I did get a lot of pictures to help me remember as many moments as I can!

This morning has been ok despite the pain, Frank helped me down the steps (and getting dressed) and Kate made me some breakfast. She’s working on her senior project next week, so she won’t be home to help in the mornings. I have my disability hearing tomorrow, so it will be a busy day. I’m hoping that it goes well, and that I can get threw it without crying. But I guess we’ll see.