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I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.

Thursday, February 17, 2011

Dreaming big...

Last night I laid in bed trying to sleep, but instead I was inspired to blog. Unfortunately I was too tired to get up and walk down the stairs and I knew that even if I could manage that I would not be able to go back up them. So I just laid there lost in my own thoughts.

What started me thinking?

I would have to say that Frank and I went to bed, and after getting in bed I realized my legs were itchy. Not bug bite itchy, but dry skin itchy. So Frank went down stairs to get my lotion, because he knew I couldn't make it down and back up again. So as I'm sitting there putting lotion on; I am reminded as to why I have dry skin that makes me itch. Not because it's winter, not because I take really hot showers or because of my medications; it is because my vitamins and minerals are low. It seems like every time I turn around something is reminding me that they are low. Like the cravings for tuna fish and turnip greens, and I don't mean craving as in "oh yeah that sounds good lets have that for dinner", I mean craving as in "OMG. I have to eat that right now, and if I don't get it I'm not really hungry for anything else".
I dropped my Critical Thinking class, because I can't think. Seriously, I'm forgetful and I get confused. So I decided that it would be a good idea to take a break. I have a clinic appointment next week and I'm hoping that NIH can help. I don't have health insurance so I am not able to get my IV therapy, which I really miss right now. I'd give anything to go it and be hooked up to a bag of multivitamin, trace minerals and lipids. So I'm hoping that some how my CF clinic might be able to help. I'm hoping that I can convince them to admit me for a tune up (you know you feel bad if you *want* in), but because this is all mito related who knows what they'll do. But a gal can dream, right?

Monday, February 7, 2011

I'm on E

So I woke up this morning absolutely wiped out, I'm not complaining about it per say; but it has become my "normal" over the past week. I really want some turnip greens and a tuna sandwich for lunch. However, I am just too tired to make anything...except maybe a bowl of cereal! I have homework for my most recent online class, and I just can not rub two brain cells together today to get it done.

You know when your car is low on gas how it's kinda sluggish on hills and sputters? That is how I feel. That's really the only way I can explain it...I can not think of any other time I've felt this way. Even when I had mono (all 4 times) I did not feel so drained. I slept a lot but now...now... I feel awake but empty (if that makes any sense).

So I was just thinking about why I want tuna and turnip greens (although I could eat spinach instead...YUM)

Protein, Niacin, B6, B12, selenium, magnesium, and potassium. There is more included but it isn't considered significant enough in them to list.

Turnip greens:
Protein, vitamin A, vitamin C, vitamin K, calcium, magnesium, and potassium. (to name a few)

Actually I'd really like a baby spinach salad with tuna or I'd settle for a tuna sub with baby spinach on it! LOL...