About Me

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I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.
Showing posts with label Duck. Show all posts
Showing posts with label Duck. Show all posts

Wednesday, December 31, 2014

Out with the sick...

We have a few friends coming over tonight, nothing big as I am still not feeling 100%. 2014 started off rough and is ending rough, and I am hoping this new year is different!!

January started off good, my best friend was expecting her first child and February 7th Caroline Rose was born. Also in Feb my friends Scott and Mary announced that they were having a baby and my daughter was accepted into the Art Institute of Pittsburgh! The cold brought a rough time with pain, but I got through it. April 14th I turned 37 years old, and in May my daughter attended her Senior prom. I got to spend Mothers Day with my daughter and my best friend and her daughter, we went to the Mothers day service at church. That afternoon my husband and daughter took me to the zoo! Also in June my daughter and her best friend graduated from High School and I got to spend most mornings on my porch watching the birds. My daughter turned 18 and my husband and I celebrated being married for 16 years! We got to spend another vacation in Duck, NC; we ended up going with some good friends and having a wonderful time. Mary and Scott had the baby, Seth Gary, and then in October my baby moved away. In November we lost our dog Snoop, she was a great dog and I greatly missed. Also in November I got sick and was sick through Thanksgiving. I started to get well, only to get sick with in a few days.

2015 is another year to make some GREAT memories. I hope to spend more time with my family and friends.


CFDunbar Designs put out some nice shirt designs through out 2014!


Available at https://www.teepublic.com/t-shirt/99502-shed


Available at https://www.teepublic.com/t-shirt/45247-i-am-rage



Available at http://shirt.woot.com/offers/hello-kitsune-1?ref=cnt_ctlg_dgn_0


Available at https://www.teepublic.com/t-shirt/45074-mandatory-enemies


Available at https://www.teepublic.com/t-shirt/110262-harley-nouveau





Wednesday, August 20, 2014

Clinic + Duck = AWESOME

I literally rolled out of bed; thankfully my legs were working this morning. I even took a shower by myself! It’s the little things. It was a very easy morning which was nice to not be stressing the appointment or the drive. Traffic was good, a little slow, but the idiot drivers weren’t out this morning. All in all it was a nice drive, and I got to spend time with my hubby so it was great. Security was busy though, but they got us through as quickly as they could. I was a little late for my PFTs but since I have a buffer between my appointments I was on time to see Dr. C.

I forgot my last PFT in February, so this whole time I’ve been thinking last October was my last PFT. So in October my FEV1 was 73%, in February it was 70%, and today was 70% too. There was a small drop in some other spots, not significant (according to Dr. C.). We discussed my new issues, drops in blood sugar, seizures, the blurry vision, etc. Nothing to report though, she said she thinks the seizures are mito related and she doesn’t seem to concerned about the sugar levels (although we have to watch them now), and the blurry vision is due to a blocked duct between my sinuses and nose. So yeah…everything went well. She is mailing my medicine, so we got home earlier than usual so we’ve been able to get some things done around the house.

Vacation is 10 days! We’re going to Duck, it is our favorite vacation spot. There is a lot to work on before we go, admittedly I'm not doing a lot but I'm getting small things done though. I'm just so excited to go, and we've got good friends going too, so it's going to be AWESOME.

Monday, July 30, 2012

Disability

For the past week I’ve been feeling pretty tired and yesterday I started experiencing bone pain. (I call it that b/c it feels like the pain when I broke my ankle/wrist/knee. Not the break part but the pain you feel after the bone sets and it starts to heal.) My left arm and my right leg, not to mention my hips feel out of socket. I couldn’t even put my own pants on. I’m not feeling sorry for myself but frustrated with my body. I’m going to try some Bayer Back and Body, but I’m not sure if it will help.

Last post I was excited to go on vacation. We went to Duck, NC with friends. We had a pretty good time although I felt like I missed a lot. My biggest missed moment was watching the sunrise from the beach. I just couldn’t wake up to do it. But I did spend some time on the deck, granted it was in the afternoons and evenings but it was nice. I did get a lot of pictures to help me remember as many moments as I can!


This morning has been ok despite the pain, Frank helped me down the steps (and getting dressed) and Kate made me some breakfast. She’s working on her senior project next week, so she won’t be home to help in the mornings. I have my disability hearing tomorrow, so it will be a busy day. I’m hoping that it goes well, and that I can get threw it without crying. But I guess we’ll see.