I'm not me, I need a Snickers.

Sorry I haven't updated in a while, I have been unsure of what to say. I heard back about the sputum culture that I mentioned in my last post. I have 2 strains of Mycobacterium Abscessus and 1 strain of Mycobacterium Avium. My doctor explained that these are most likely contributing to my fatigue, which had been progressively getting worse. It also explained other symptoms that I was having too.



My CF doc got me in to see a doctor who specializes in these bacteria, and he in turn put me on some antibiotics. First I started Amikacin. I was on it for two and a half weeks and then I started getting migraines and a lot of sinus/ear issues so I had to stop taking it. We decided to stay on course and start the next antibiotic Azithromycin. After two weeks I started Tedozolid/Sivextro, after two weeks I stopped my Bactrim and started Ethambutol. So now I'm taking those 3 along with my other meds and nebs and my next appointment is in April. I'm still going in to get IV therapy, but because of my fatigue I'm going in every other week.



I've just been in a mood these past few months, a strange mixture of weariness, boredom, and unable to communicate well. I've been second guessing myself and generally feeling unsure about things. I went out by myself last week, grabbed some lunch and tried to shop a little but I felt uneasy. I wish I could explain it all. I want to be around the people that I love and care for, but I'm really self conscious. I don't like people seeing the 'sick' come out, and I feel like at this time in my life I'm not able to hide it very well. I guess I don't like appearing vulnerable?

Up

My family and I went to see Up the other night. I won't reveal anything about it for those who want to see it, but...

I cried. Of course all Disney/Pixar movies are like that. This one was different though. This was MY movie. I wish I could explain it but all I can say is that sitting there watching the screen I identified myself with one of the characters and my husband did the same thing. We didn't even really talk about it until we left the theater. It was just one of those wierd coincidences that happen on occassion I guess.

This morning I am getting ready for a round of IV therapy in Frederick. What I really want to do is to crawl back in bed; but I know the lack of energy is a direct result of no IV's for 2 weeks. Bad Chrissy. *smacks hand*

Other than that, everything here is going well; my daughter Kate is almost out of school. My husband hasn't been feeling well lately, but the doctor prescibed some high blood pressure medicine so hopefully that will help. He has been stressed out lately with work and then more work when he gets home!