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I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.

Tuesday, August 4, 2009

Still thirsty...

Well today I was finally able to get my IV's again! YAY! As soon as the IV was hooked up and running I totally passed out. I slept hard for the next 4 hours. I wish I could say that I feel great having had them, but I don't. I do feel a little better, but the true test will be my pain levels. They have been off the charts for the last week. My muscles have just been so achey...they were basically being starved with out the IVs. (At least thats what I think was happening) I have IVs again tomorrow and then again on Thursday, so I'm hoping this weekend will be a good one!

Kate has been staying with Frank's parents this week; I miss her terribly, I can't wait for her to come home! I have no clue what I'm going to do when she goes off to college...my plan is to move with her. lol

The IV center drew blood today so I'll be getting my results again. I can't wait to see what they are now. In other news I have a theory about my CK. My doc thinks it is related to my over all cholesterol, but I don't think it is. I've been charting and mapping my results for months and I think it has to do with my HDL (good cholesterol) So I showed my doctor at my appointment yesterday and she agreed there might me something. So it looks like we are going to try to raise my hdl. Obviously we can do it through food or IVs because I don't absorb those well enough. So she wants to try estrogen patches. That's right! My doc said estrogen is a high densitiy lipid protien, so...the plan is to try to sneak it in with the patch...
but shhhh....if my body finds out it may not work. You know it does not like to absorb anything; let alone HEALTHY stuff.

PS-If you want to look back at the test results I have posted...check out the cholesterol, hdl, ldl and CK...you'll see what I'm talking about!!


  1. Okay so was the passing out just from being exhausted and not getting the IV treatments or what?? That is scary.

  2. I just think my body was like..."Ohhhhh vitamins...we can rest..." LMAO! The nurses said they kept coming to check on me...they said I must have needed it. hahaha

    I woke up 4 hours later, kinda confused with a horrible head ache, but I took some tylonol and felt much better.

  3. I'm hoping you have a great weekend as well!!!