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I am a wife and mother who also has cystic fibrosis and a mitochondrial disease.

Friday, July 24, 2009

IV center; here I come!!!

So yesterday my hubby had his doctors appointment; we have the same doctor so he asked me to go with him. He has trouble with doctor speak...
We are sitting in the room and she comes in. She looks over at me and says, "I can't believe the IV center wants me to admit you." I nod and say "yep. I'm fine with being admitted...I feel like crap." Then my doctor explains that FMH and every hospital have viruses and bacteria that run wild and she doesn't want me exposed to it because my immune system is crap. I mean I know those bugs were there, I'm very aware of the crap floating around at the hospital. But it just never occurred to me that she would be afraid to admit me. I don't know why I didn't think of that reasoning. I feel so dumb! So it looks like I get to spend the next two weeks at home. Resting...Blah...how do I do that!?! LOL (she is in talks with the IV center to get me back in next week, but the isolation would be for my protection...)

Frank got his test results, a prescription, and then was off to Rose Hill for his CT scan. I'm not sure what happened but he went in happy and came out a bear! We think it was some sort of reaction to the contrast dye. Neither of us are sure, but that is the only thing we could think of. When we got home he worked on the website for a bit and then took a 3 hour nap. He was so upset that he was so tired. He wanted to work on Shot stuff all day since he had off to get his scan and see the doctor. But I made him take that nap, I was afraid he'd fall asleep at the computer!

Kate and her friends (Molly and Bethany) are in the other room playing Rock Band. It's nice to have them here; they are good kids. But don't tell them I called them kids. HA HA! I'm trying to convince them to be a chick band. LOL Molly is drumming and Kate is the guitar and Bethany is singing....they aren't half bad.

Tonight I am planning to make a beef roast for dinner. This will be my second attempt at a roast that Frank will like. He is not a beef person, unless it is ground up or chicken fried! He choked on a piece of steak years ago...and it scared him for life.

I'm off to rest...whatever that is...


  1. My dad has the same issue with hospital admittance - the doctors have always been extremely reluctant to have him be admitted due to his immune system issues because of his rejection meds. So, what they said about you makes alot of sense. They even refused to admit him when he got pneumonia.

    What is going on with Frank? Tell him I say hi.
    Tell Kate hi too. When we come down for Kung Fu night, we'll have to rockband. :-)

  2. That explanation does make total sense. We all know that your immune system is weakened. You certainly don't need to take any chances. I hope that the IV center will get you back in soon!! Keep us posted.